Category Archives: Assistance dog

Avoidance

After about three months of Miss Z going in and out of the hospital, it looks like we might finally be seeing the end of her pneumonia. Then again, the bacteria that caused it is notoriously difficult to eradicate completely, so she might just be in a good patch before she goes downhill again. Either way, it is nice to have Z at home and back at school and to be able to sleep in my own bed.

However, this doesn’t mean that we can relax. There are a lot of things still in the pipeline that are worrying and stressful and require scary, grown-up decisions. When you have a medically fragile, life-limited child, I guess those scary, grown-up decisions never stop coming.

But I’m not ready to write about them yet. So, instead I thought I would practice the great art of avoidance and bring you the second in my occasional series featuring Juno, our grumpy, anti-social cat (see here for the first article in the series).  Juno only loves Miss Z – the rest of us are useful for three things: opening the door, food, and occasionally as a warm and squishy place to nap (so long as we don’t move, laugh, sneeze, or breathe too much).

Miss Z and Juno share a mutual appreciation for soft blankets and warm places to nap.  And if imitation is the sincerest form of flattery, then Juno certainly flatters Z with her places to curl up for a snooze. Apparently, Z’s special needs equipment remains the best place to sleep, in Juno’s expert opinion.

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A mobile nap option

Sadly, she’s not allowed on the wheelchair, which means she has to seek other alternatives. The hoist seemed to be a good place, until I lifted her in the air…

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Juno gets a strange feeling of rising up into the air…

And tried out the bath chair as well, but unfortunately, it often seems to be damp…

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With all these challenges, poor Juno is left to compete with Miss Z for the best spots:

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There is a constant power struggle for the beige fleecy blanket

And is often left a bit disappointed…

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Are you finished with my chair yet, Z?

However, at this time of the year, when it starts to get chilly at night, neither Z nor Juno complain about having to share a bed.

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Life with Miss Z is sometimes hard. But nothing in life is impossible with a bit of avoidance and some cute cat pictures.

 

 

 

Family therapy dog

It is well past time that I give an update on young Benjamin, our golden retriever-poodle cross puppy who will hopefully grow into an assistance dog for Lil Z. He is 8 months old now and well and truly settled into life with our family.

As I’ve written before, his arrival had poor timing since Lil Z ended up in hospital the day after he arrived. QB collected Ben on a Thursday afternoon. He was a bit nervous when he first arrived, but by evening he was pretty relaxed. Even our cat seemed to accept him (probably because she established early on that she was boss). We were thrilled that he still showed interest in Lil Z.

Although cuddles with Vegemite were far and away his favourite thing.

Overall, by evening, he appeared to have settled in quite happily.

Our trainer strongly recommended that Ben be crate trained, and it was a good recommendation. Ben made it through his first night in the crate without any crying or accidents.  Considering QB and I were braced for sleepless nights on par with a newborn baby, we were surprised and pleased the next morning.

And then Lil Z had a major seizure and she (and I) ended up in hospital for a week. Not the start to Ben’s life with us that I would have chosen. And I worry that it may have caused problems in establishing a bond between the two of them.

When we finally got home from the hospital a week later, Ben and Vegemite had already established a close bond. But Ben was still interested in Lil Z and they immediately realised they shared a love of naps.

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Since Ben’s arrival we’ve been working hard to make him what our trainer calls ‘bomb proof’. He has to be able to go everywhere without getting scared or anxious. So from a very early age he has been out and about with us – going for walks, school drop-off and pick-up, coffee runs (I’ve personally ensured he has no fear of cafes or coffee machines), and anywhere else we go where dogs are allowed. We also take him twice a week for training at our trainer’s puppy and dog school, where he gets to interact with other dogs and is learning basic commands and obedience.

He’s doing pretty well with most of his basics. He is house-trained and follows most basic commands. Although he went through a phase of stealing and chewing things (particularly shoes and the girls’ toys – we have several amputee Barbies now), he now only chews his own toys. He is also crate trained and actually puts himself to bed in his crate (which is in the girls’ room) every night when you give the command “bedtime”.

However, he is still a puppy, so his training is far from perfect. He gets over-excited, especially when he sees other dogs. He pesters visitors to our house mercilessly to get attention. And although he’s house trained, he will try to get away with weeing on the lawn, rather than going to the spot at the back of the garden we’ve chosen for him to go. And he has an inexplicable fascination with rocks (that resulted in him having to have one removed from his stomach after he swallowed it). And he and the cat drive me crazy by teasing and squabbling with each other (although I think they both secretly love each other).

Hygiene around our house has definitely taken a turn for the worse since Ben’s arrival. He doesn’t shed, which is brilliant, but leaves and grass stick to him and end up all over the floors. When it rains, there are muddy Ben-prints around the house, unless you catch him and clean his feet as he comes inside. And although he hasn’t yet started alerting us to seizures, we do jokingly call him the vomit response dog, because he always comes when he hears Lil Z being sick – eager for a chance to wash Lil Z’s face and hands and clean up the floor. One day I found Ben and Lil Z cuddled together on the floor: she had his paw in her mouth while he licked her face.

Yuck!

Yuck!

Training him is hard work, and I’m not convinced that we’re doing a great job. He doesn’t “go” in the house, but we haven’t yet trained him to go on command. We should be taking him out and about more than we do. We’d like to spend time doing training exercises every day, but the realities of life mean that we don’t do a great deal of practice during the week. I’m not sure we’d be up to the task at all if I didn’t work from home, our au pair wasn’t very dog friendly (she takes him out for long walks that totally wear him out) and QB and I have little social life – so plenty of time during the weekends to dedicate to dog training classes.

Dog school

Dog school

And although Ben is interested in Lil Z and vice versa, it is going to be a challenge to get them to form a real bond. As a puppy with lots of energy, he far prefers running around the garden with Vegemite to sitting patiently while we help Lil Z stroke him. Letting Lil Z interact on her own with Ben can also be problematic since she tends to kick and hit him (not hard enough to hurt him) when trying to touch him. Although Ben has a beautiful nature and doesn’t respond to Lil Z giving him a thump, it doesn’t seem to help the bonding process.

And with Lil Z being so vulnerable since Ben arrived – with her leg in a cast and the changes in medication making her sleepy – we have been guilty of stopping Ben from interacting with her too much. It can be hard not to tell him off when he goes near her, since he is usually so bouncy and likes to get in her face. We have to be particularly careful not to tell him off or say “no” too much when he is around Lil Z, or we will end up inadvertently teaching him to stay away from her. It can be a tricky balancing act, and I have at times wondered if getting a puppy and letting it grow up alongside Lil Z is actually aiding the bonding process – or hindering it.

But we’ve had our successes, too. One afternoon Lil Z was unhappy and unsettled. Ben laid down beside her and I helped her to stroke his paw. It immediately soothed her and both she and Ben fell asleep – holding ‘hands’. You can’t really expect anything better than that.

At the moment, I think it is too early to tell if Ben will grow up to become the assistance dog that we hope he will be. He is intelligent and has a great temperament, but who knows if he will be able to detect and react to Lil Z’s seizures or respond to her in the ways we want him to do. And even more likely than Ben failing is the risk that QB and I will fail – fail to find the time and energy to dedicate ourselves to the level of training he requires.

Despite this uncertainty, none of us regrets the decision to get Ben. He has become (in the words of our trainer) a ‘family therapy dog’. His love and devotion to Vegemite gives her greater emotional support, which she needs as the sibling of a child with special needs. Ben stepped into that role on his first morning, when Vegemite hugged him while we waited for the ambulance. And the rest of the time, the two of them just have lots and lots of fun. He fills the gap of playmate and companion that has been left by Lil Z’s disabilities.

Best friends

Best friends

Ben’s happy – and often just silly – nature cheers up the whole house and he’s often responsible for lightening the mood. Taking him for walks or playing with him in the garden blows away the cobwebs and makes you feel better. Brushing him in the evening can be downright therapeutic. And getting out to dog training classes gives us something new to do and discuss – since neither QB nor I have any experience training dogs, we’re finding it interesting and rewarding.

So, a few months into our assistance dog experience, what have we learned? Well, quite a lot actually:

  • It is a big job. Even making Ben ‘bomb proof’ takes a lot of effort and extra planning. I’m not sure we’d be able to do it if I didn’t work from home and our au pair wasn’t willing to take Ben out with her regularly.
  • It is expensive. Ben wasn’t cheap and we’ve invested in a “lifetime plan” for training (and that excludes the special lessons that he will need later to train him for his assistance dog role), not to mention food, toys, and grooming. But compared to the cost of an assistance dog in Australia (which begins at around A$25,000), I suspect doing it ourselves will turn out to be considerably less expensive.
  • There are no guarantees. We have been lucky with Ben – he has a great temperament for working with kids. But many assistance and guide dogs flunk out of their training programme for all sorts of reasons, and it may turn out that Ben simply won’t be able to make the grade and pass his test to become a qualified assistance dog. This could also be as much due to the inexperience of QB and me as it is for Ben’s personality.
  • Bonding between a dog and a non-verbal, non-mobile child isn’t easy. Ben likes Lil Z, but he loves Vegemite. And Vegemite loves him. Making sure that Lil Z fits into that equation is going to be a challenge.

However, despite it all, we wouldn’t trade our family therapy dog for anything.

Therapy dog

Therapy dog

 

The selection process (part 2)

After our first visit to the breeder, we started to get excited (and a bit nervous) about a puppy finally arriving. This whole assistance dog thing has been in the planning stage for so long that it was slightly scary to think we were finally putting our plans in action!

During the week, the breeder contacted me, saying that she was worried that we had ruled out the female puppies too quickly – and she wondered if I was really 100% on board with choosing a boy. I really just wanted the best puppy for Lil Z, but I had been a bit surprised that our trainer had ruled out all the girls so quickly, after QB expressed his preference for a boy.

To be honest, at that point, QB and I already had soft spots for the light blue puppy that had responded so well to Lil Z during our visit. But because this exercise isn’t about what we wanted (but what was best for Lil Z), we agreed to see all the puppies when we visited again the following week.

The drive to the breeder was slightly tense. Both QB and I were a bit worried that neither of the two puppies we had singled out last time would show any interest in Lil Z this visit, which would mean we’d have to start the selection all over again. And although the breeder had been incredibly patient and understanding – letting us go through a selection process first, before she assigned any of the puppies to their new owners – she couldn’t hold off forever. The other puppy buyers were desperate to find out  which puppy she’d chosen for them.

It was amazing how much the puppies had changed in a week. Their curly coats had started to come in and they were much more boisterous and less scared than on our previous visit.

Again, I sat with Lil Z and waited to see which puppies would pay attention to her. Unlike last time, they all came to investigate. However, the two boys who didn’t pay any attention last time were too rough with Lil Z – putting their paws up on her back and jumping around – and it was obvious she didn’t like it at all.

Others were better behaved. Lil Z enjoyed having her fingers licked and petting their soft fur. However, many of them lost interest and wandered off to play with Vegemite or with each other. A few others hung around, or kept going back to Lil Z. Like on our previous visit, we slowly narrowed the field to two puppies. The light blue boy was still showing interest and the yellow girl was as well.

Although a late entrant, the yellow girl was lovely. She obviously enjoyed being cuddled and was calm but very affectionate with Lil Z. It was a difficult choice. But after a chat with the breeder, we decided that she was probably not as intelligent as the light blue boy. She was more of a cuddler than a doer. If we were choosing a pet, we would have gone for the yellow girl. But choosing a future assistance dog, we went for the light blue boy.

Decision made. At last.

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The selection process (part 1)

We now have a beautiful little puppy settling into life with us, but choosing that puppy was serious business. And it wasn’t a choice we made lightly. Or quickly.

Shortly after the puppies were born, I found the dog trainer we decided to use on our DIY assistance dog journey. I’d spoken with several trainers and they all claimed that they could help us. However, this guy actually had the experience and reputation to back it up. He could tell us exactly how he’d approach the job and what we would need to do.

We met with him one evening and he brought Woody, a labradoodle he is training to be an assistance dog for another little girl. He wanted to see how Lil Z interacted with a dog. I was a bit nervous (especially since it was nearly Z’s bedtime, so there was a risk of it all going wrong). But in the end, Woody flopped down on her feet and they both fell asleep.

The trainer had fairly clear views about selection. He said that it was impossible to know which puppy would be the best assistance dog. A lot of puppies are selected for guide dog and assistance dog training every year and are later rejected for all sorts of reasons that simply aren’t apparent when they are babies. So, we were not going to look for the dog with the most potential, but the dog who would bond best with Lil Z.

This, however, may not be as easy as it sounds. Lil Z is not a child that a puppy would naturally gravitate towards. She can’t run and frolic with a puppy or throw a ball or stick. She can’t even pat a puppy without assistance. And she makes unpredictable jerky movements with her arms and legs that cans startle you if you’re not expecting it. And she coughs – a lot. And swings her arms – hitting anything within reach. And kicks her legs – kicking anything within reach (and if she finds something with her feet, she loves to keep on kicking it). In fact, the only thing going for Lil Z in a puppy’s mind is that she smells interesting – nappy, feeding tube, dribble, vomit and a bit of Nutrini formula are a fascinating fragrance to a dog.

So, I was skeptical that there was going to be much bonding, but off we went, with the trainer, to see the breeder and the puppies, who were 6 weeks old by then. We all gathered in a small, enclosed area outside and the breeder let out the eight puppies. Vegemite was in heaven. She was swarmed by the cutest puppies you could imagine. The trainer was watching them all intently, in order to pick out the most dominant or most submissive of the litter, who wouldn’t make prime candidates. Even the skeptical QB was in puppy love.

Lil Z sat on my lap and we waited quietly to see who would pay attention to us. Only the puppies’ mother came to say hello. I was worried. What if NONE of them acknowledged Lil Z?

But eventually they came. Some just had a sniff and wandered off. Others hung around a bit more. Lil Z coughed several times and scared off several of the curious puppies.

During an earlier conversation with the trainer, we had suggested that we were leaning towards a boy (although we wanted the best one for Lil Z, regardless of gender). Why a boy? Well, the trainer believes they are easier to housetrain (the breeder disagreed) and QB wasn’t enthusiastic about having yet another female around the house (feeling outnumbered with 4 of us already). So, the trainer put all the girls back in their crate and we just mingled with the four boys, who were distinguished by the colour of their collars.

Two of them – green and purple – didn’t pay any attention to Lil Z. However, light and dark blue hung around, came back for a second and third look at her, and generally showed a bit of interest. In fact, light blue was so interested in all of us that when all his brothers and sisters fell asleep, he was still awake and interacting with us.

By the end of the night, the field had narrowed to the two blue boys. We decided to return the following week to see if they were both still interested in Lil Z and to make a final decision.

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A little ray of sunshine

I try to be a positive person. Truly, I do. In fact, if anything I think that Lil Z has made me more positive, because she helps me realise that life is too short and too busy to get wound up over others’ ridiculous actions. QB thinks I’m the ultimate pessimist, but then he’s the lucky person that I unload all the negativity and worries onto when it starts to feel too much.

But, as hard as I try, there just hasn’t been much to feel positive about this week. My week resembled the weather – grey and rainy and a bit dark. I won’t bore you with my troubles – most of them are just worries bubbling away in the back of my mind anyway. But it would have been nice to have a bit more sunshine and light. Nothing major – I don’t expect us to win the lottery or for Lil Z to suddenly begin walking and talking – but just a little something to let me know that I’m not totally out of luck.

Which is why I was so pleased to get some good news when it finally arrived. Lil Z’s puppy has been born! After a lot of conversations and research, we selected a goldendoodle (poodle – golden retriever cross) breeder and have been on her waiting list for a puppy since January. The breeder and our dog trainer (who we found after a lot more conversations and research) are going to work together to choose the puppy with the best temperament and personality for the job. So, for now, we don’t even know if our puppy will be a boy or a girl. Nevertheless, there is a puppy out there, only a few days old at the moment, but who will carry the weight of huge expectations to broaden Lil Z’s world.

It was a little ray of sunshine in a week otherwise filled with rain clouds.

There are great expectations for one of these puppies…

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