A new girl

Its been a few hard weeks. And by that, I mean really, really hard. We had a meeting with Miss Z’s paediatrician to discuss Miss Z’s life limiting condition and where will want to draw the line on medical intervention. Miss Z’s new carer didn’t meet expectations and we let her go after only a week. And we’ve all been sick – even Vegemite, who is never unwell. And then, Miss Z – who initially appeared to have a gastro bug – got worse and ended up in hospital. It was a pretty scary week during which she became non-responsive even to pain, no one really knew what was making her so ill and at one point it was thought that she might have an infection of her brain.

Fortunately, after three days of IV antibiotics, she started to wake up and after seven days she was allowed to go home.

And then something wonderful happened. She REALLY woke up.

We’ve never seen Miss Z so awake and aware and interactive. She looks at you when you speak to her – really looks at you. She smiles – a lot. She intently watches what is going on around her. And maybe, just possibly, we have finally heard her laugh (at her sister, no surprise there).

And perhaps my favourite part of all – she now pouts when she is unhappy. It is  the cutest little pout I’ve ever seen. Not that she’s happy when I laugh at her instead of taking her unhappiness seriously.

How can you not laugh when you see this face?!

How can you not laugh when you see this face?!

We have no idea what has made her so much more responsive to the world around her. And we have no idea if it is going to last, or if she will eventually slide back into having good and bad days, but mostly just middling along. Already, I worry that she’s sleeping more and interacting less. But I’m not going to let myself worry about what is to come – Miss Z always surprises us on that count. Instead, we are all trying to sit back, take a deep breath, and enjoy the little girl that we have right now. Because she is amazing.

Determined not to wake up in the morning, no matter what.

Determined not to wake up in the morning, no matter what.

...and then she discovers that Doc McStuffins is on tv...

…and then she discovers that Doc McStuffins is on tv…

Feeling much better after watching 'the Doc'

Feeling much better after watching ‘the Doc’

Advertisements

One response to “A new girl

  1. Pingback: My daughter, my full time job | oneofthewonders

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s